When you see Luke, you will first notice his beautiful blue green eyes that sparkle and his amazing dimples. He is simply adorable. He looks like other children that are two. You can’t tell by looking at him, but he struggles to communicate. Upon closer observation, you will note that he is often silent and makes very few sounds, some utterances and has about ten approximations.
Luke has Childhood Apraxia of Speech.
Childhood Apraxia of Speech is a speech disorder that makes it difficult for my child to correctly pronounce syllables and words. Children with apraxia know what they want to say. The words are in their heads, but often they can’t get them out. If they do vocalize the word or words, they are often unrecognizable. Because of neurological reasons that stem from oxygen loss and or congenital anomaly, children with CAS have great difficulty with motor planning. They struggle with producing the precise, specific series of movements of the tongue, lips, jaw and palate that are necessary for intelligible speech.
Their brain tries to tell the muscles what to do, but somehow that message gets scrambled. The Apraxic child must figure out how to unscramble the mixed messages his brain is sending to his mouth in order to produce words.
Each child with Apraxia is a unique individual, with their own set of abilities, needs, and challenges. However, one theme that is common is that for some period of time, children with Apraxia of Speech need frequent and intensive speech therapy. This therapy must be repetitive and also challenging, so that they can learn to accurately produce syllables, words, and sentences.
This is where the Hudson Family Foundation was able to help us. They assisted in providing the intensive therapy that Luke needs from a leader in the field of CAS, Kaufman Children’s Center. Because of the Hudson Family Foundation’s grant, Luke will be able to attend SPEAK camp this summer in West Bloomfield, Michigan. This is a camp where world renowned SLP, Nancy Kaufman, works individually and with small groups of children with CAS daily. The 3 week intensive therapy is costly and without the gracious assistance of the HFF, this would not have been possible for us to afford.
Having a child with special needs is not a burden, but the burden of providing the funding to meet their needs can be overwhelming when insurance denies therapy and treatment.
Thank you Hudson Family Foundation! (And GO BRAVES!!!)
We are thankful for your faithful service to God through helping others.
God bless you!