Wednesday, May 14, 2014
Thursday, May 8, 2014
Overcomer
I read this and was fine with it until I got to the last sentence.
It stung.
My face turned red.
My body hot.
Tears swelled in my eyes.
I think even though my mind knows there isn't a cure, my heart wants a cure.
I want someone to say it's done.
Not just residual.
Gone.
Finished.
Over.
Apraxia can not be cured; only overcome.
I had to sit and let those words sink in.
I am a firm believer that while Childhood Apraxia of Speech may not be cureable; my child was and is still being healed.
Luke can speak.
He can tell us his wants.
His needs.
His thoughts.
His dreams.
His opinions. (And boy, does Luke have some strong opinions....wonder where he gets that from?!?)
He is rarely quiet.
It is everything I had wished, hoped and prayed for.
And while I am pained by the words incureable.
I hold on to the truth that I know.
He is an overcomer.
He has already overcome so much.
There is more to come.
And I will be cheering him on the whole way, louder than anyone else.
Join us in celebrating Luke's voice and all of the other precious children who have been diagnosed with this rare speech disorder known as Childhood Apraxia of Speech.
May 14th is the 2nd National Apraxia Awareness Day.
We ask that you wear blue and white to honor our little hero and all of the others working on their "roar".
Use the hashtags #apraxiaawareness and #wearblueforluke when posting pics or posts on social media ;)
Tuesday, May 6, 2014
CHAMP Camp Parent Guide
That bio.
Well it's in the new George Washington University CHAMP Camp Parent Guide.
Can't wait to share what we have learned on our apraxia journey with others!
See :)
Thursday, May 1, 2014
Gearing up for Apraxia Awareness Day
Huge SHOUTOUT to Rep. Amy Alexander Carter for making this resolution happen again this year!
We are encouraging YOU to wear blue and white on May 14th.
A pic from last year's 1st Apraxia Awareness Day
JOIN our family....
in celebrating Luke
and all of the other precious children finding their voices.
That's Wednesday.
I already have my shirt ;)
The donations raised by it will help to fund our SLPs journey to CASANA's apraxia boot camp.
I vowed to be Luke's voice until he found his; and thankfully with God's grace, direction, provision and healing touch...we are there.
Luke can speak. He is understood by others. And I must tell you....it is completely a dream come true.
Little tokens of appreciation to our awesome SLPs
What are YOU planning to do to show your support?
We made some ribbons, fliers, brochures and are working on a tri-board.
You've come a long way baby and while we support you all year long; we will especially be celebrating your hard work and success on May 14th.
All.
Day.
Long.