I read this and was fine with it until I got to the last sentence.
It stung.
My face turned red.
My body hot.
Tears swelled in my eyes.
I think even though my mind knows there isn't a cure, my heart wants a cure.
I want someone to say it's done.
Not just residual.
Gone.
Finished.
Over.
Apraxia can not be cured; only overcome.
I had to sit and let those words sink in.
I am a firm believer that while Childhood Apraxia of Speech may not be cureable; my child was and is still being healed.
Luke can speak.
He can tell us his wants.
His needs.
His thoughts.
His dreams.
His opinions. (And boy, does Luke have some strong opinions....wonder where he gets that from?!?)
He is rarely quiet.
It is everything I had wished, hoped and prayed for.
And while I am pained by the words incureable.
I hold on to the truth that I know.
He is an overcomer.
He has already overcome so much.
There is more to come.
And I will be cheering him on the whole way, louder than anyone else.
Join us in celebrating Luke's voice and all of the other precious children who have been diagnosed with this rare speech disorder known as Childhood Apraxia of Speech.
May 14th is the 2nd National Apraxia Awareness Day.
We ask that you wear blue and white to honor our little hero and all of the others working on their "roar".
Use the hashtags #apraxiaawareness and #wearblueforluke when posting pics or posts on social media ;)
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