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Showing posts with label CASANA. Show all posts
Showing posts with label CASANA. Show all posts

Saturday, March 15, 2014

Apraxia Awareness Day 2014 and Better Speech and Hearing Month

http://flipagram.com/f/A4GdsUmryU

Mark your calendars. Apraxia Awareness Day will be May 14th.

We will be meeting with Rep. Amy Alexander Carter to receive the 2nd (ever) resolution of the state of Georgia's Apraxia Awareness Day.  

The resolution will be given to Luke at 'more than words' Pediatric RiteCare Clinic on May 4th. 



Last year was the 1st day of its' kind and we were so blessed to have played a tiny part in bringing it to our state.




Please join us at the Better Speech and Hearing event and by wearing blue and white on May 14th. 

I made the little flipagram video at the top of this page to celebrate our Luke and all of his MAJOR accomplishments. 

Please take a minute to watch it. 

Luke most definitely ROARS. 

And we are ever so grateful.

To God be the Glory!!!









Monday, July 15, 2013

Reaching New Heights

Never did I think that I would attend the CASANA conference.  (For those of you reading who don't know what that is...its the mecca for information about Childhood Apraxia and it happens once a year)

I had secretly hoped that one day, after we were done with intensives and the many therapies that I would go.

With help from the Georgia Council for Disabilities, this secret little dream of mine became a reality. I attended the CASANA Conference 2013 that was held in Denver, Colorado.


I was able to learn from the best of the best about apraxia; the latest research, the cutting edge therapy techniques, the genetic pieces of the puzzle, and much, much more. 


Thinking Outside the App with the AZ Speech Guy aka Jeremy Legaspi, M.S., CC-SLP


Phonological Awareness with Dr. Amy Skinder-Meredith 


Play and Social Thinking with Nancy Tarshis, MA, MS, CC-SLP


But most importantly I met other mothers and families that have experienced apraxia firsthand.  We shared stories during our breaks, met over food, and even bonded by painting.



I had my copy of Anything but Silent autographed by Kate Hennessy and I finished reading it in about 2 hours ;)



Smiling with Brooke about finally meeting in real life


Mary Squared: Mary Mahon (an iMum) and Mommy Square


Our group's table at Canvas' and Cocktails


Nancy Kaufman and I with our finished masterpieces


At the luncheon, they announced that the 10th annual CASANA conference will be in Nashville, Tennessee! Yee-haw!!!


And then there was my chance meeting with this mama. She is the epitome of the word warrior and is just as crazy as I am about winning the war on apraxia. The similarities between us are so close that it is almost scary. I am positive that God knew we needed to meet.

My spirit is renewed and I returned home to spread and share the information gained with others. 









Monday, May 6, 2013

Childhood Apraxia of Speech Awareness Day~May 14


May 14, 2013 marks the first annual Childhood Apraxia of Speech Awareness Day, during which the CASANA (Childhood Apraxia of Speech Association of North America) organization is attempting to raise local, state and national awareness about Childhood Apraxia of Speech, a particularly difficult, persistent, and severe neurological speech disorder in youngsters. http://www.apraxia-kids.org/press-release-casana-celebrates-the-first-ever-apraxia-awareness-day-on-may-14/
As the mother of a young child affected by Childhood Apraxia of Speech, I am passionate about spreading CAS awareness and feel compelled to advocate for their specific needs as well as acceptance.


It is my hope that you will join us in raising Apraxia Awareness during Better Hearing and Speech month by celebrating Childhood Apraxia of Speech Awareness Day on May 14, 2013. 

Together, we can speak for those without a voice.


(Background)

CAS causes affected children to have extreme difficulty planning and producing the precise, highly refined and specific series of movements of the tongue, lips, jaw, and palate that are necessary in producing clear, intelligible speech. It is among the most severe of speech and communication problems in children.

While the act of learning to speak comes effortlessly to most children, those with apraxia endure an incredible and lengthy struggle. Although not life threatening, the disorder is life altering. Families are left to cope with the emotional, physical, and financial challenges of having a child diagnosed with CAS.

Every child should be afforded their best opportunity to develop speech. With early intervention and apraxia specific therapy, most children with CAS will learn to communicate with their own voices. These children, as well as their families, deserve our highest respect for their effort, determination and resilience in the face of such obstacles.

Childhood Apraxia of Speech Day is a time to raise awareness for CAS, recognize the families affected by this motor planning disorder and support therapists serving CAS affected patients. May 14th is the perfect time to support the goals of Better Hearing and Speech Month and raise Apraxia Awareness. 
Thank you in advance for supporting Childhood Apraxia of Speech Awareness Day. 

www.unlockinglukesvoice.org